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LeadingAge

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Parent: Area Agencies on Aging Hop 4
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LeadingAge
NameLeadingAge
TypeNonprofit trade association
Founded1960s
HeadquartersWashington, D.C.
Region servedUnited States
MembershipNonprofit and mission-driven providers

LeadingAge is a nonprofit association representing nonprofit and mission-driven organizations that provide eldercare services in the United States. The association engages in advocacy, education, research, and quality improvement for providers of nursing homes, assisted living, home care, continuing care retirement communities, and affordable housing. LeadingAge works with policymakers, health systems, educational institutions, and philanthropic organizations to shape long-term services and supports for older adults.

History

Founded in the 1960s by a coalition of faith-based and civic organizations, the association grew during the expansion of postwar social programs alongside institutions such as St. Vincent de Paul, Catholic Charities USA, The Salvation Army, YMCA, and YWCA USA. During the 1970s and 1980s it intersected with federal initiatives like Medicare, Medicaid, and the Older Americans Act, and engaged with think tanks such as the Kaiser Family Foundation, Brookings Institution, and Urban Institute. In the 1990s and 2000s the association formed partnerships with universities including Johns Hopkins University, Harvard University, University of Pennsylvania, University of Michigan, and University of California, San Francisco to advance gerontology research. The organization has participated in coalitions with trade groups like AARP, American Health Care Association, National Association of Area Agencies on Aging, LeadingAge California, and faith-based networks including Lutheran Services in America and Adventist Health. Major historical moments included responses to outbreaks such as H1N1 influenza pandemic and COVID-19 pandemic, collaboration with federal agencies including Centers for Medicare & Medicaid Services, Centers for Disease Control and Prevention, and Department of Health and Human Services, and interactions with legislation like the Patient Protection and Affordable Care Act. The association has been led by executives who engaged with funders and partners such as the Robert Wood Johnson Foundation, The Commonwealth Fund, John A. Hartford Foundation, MACPAC, and the Office of the Inspector General (HHS).

Mission and Programs

The association’s mission emphasizes quality of life and care for older adults and caregivers, aligning with organizations like National Institutes of Health, Administration for Community Living, Social Security Administration, Veterans Health Administration, and United Way of America. Programs address clinical quality, person-centered care, affordable housing, workforce recruitment, and technology adoption, collaborating with firms and institutions such as IBM, Microsoft, Google Health, Epic Systems Corporation, Allscripts, and Centers for Medicare & Medicaid Services Innovation Center. Initiatives include workforce development alongside American Nurses Association, credentialing with Commission on Accreditation of Rehabilitation Facilities, and partnerships for dementia care with Alzheimer's Association and research consortia at Massachusetts Institute of Technology and Stanford University. Policy education and technical assistance have engaged regulatory bodies like Food and Drug Administration, Occupational Safety and Health Administration, and state departments including New York State Department of Health and California Department of Public Health.

Membership and Structure

Members include nonprofit providers, religious-affiliated organizations, and mission-driven health systems such as Mayo Clinic Health System, Cleveland Clinic, Kaiser Permanente, Ascension Health, and regional systems like Presbyterian Healthcare Services. The structure includes a national board, state affiliates (for example LeadingAge New York, LeadingAge Ohio), and practice-specific councils that work with professional associations like American College of Healthcare Executives, Gerontological Society of America, National Association of Social Workers, and American College of Physicians. Funding streams have included membership dues, philanthropic grants from Ford Foundation and Gates Foundation, and program revenues tied to partners such as Pfizer, Johnson & Johnson, CVS Health, and UnitedHealth Group.

Advocacy and Policy Positions

The association advocates before bodies like United States Congress, Senate Finance Committee, House Ways and Means Committee, and federal agencies including Centers for Medicare & Medicaid Services and Administration for Community Living. Policy positions often intersect with major legislation and policy debates involving Medicare Advantage, Medicaid managed care, Affordable Care Act, No Surprises Act, and quality measurement programs linked to National Quality Forum. The organization has filed comments and provided testimony alongside stakeholders such as AARP, American Hospital Association, American Medical Association, Health Care Compliance Association, and consumer advocates including Consumer Financial Protection Bureau-adjacent groups. It frequently partners with disability and aging advocates like Easterseals, National Council on Aging, and Bipartisan Policy Center.

Research and Publications

The association produces white papers, policy briefs, and toolkits in collaboration with academic partners like Columbia University, Yale University, Dartmouth College, Brown University, and research entities such as RAND Corporation and Pew Research Center. Publications address workforce shortages, payment models, care transitions, infection control, and aging technologies, citing frameworks used by Institute for Healthcare Improvement, Agency for Healthcare Research and Quality, and National Academy of Medicine. The association’s analyses are used by state agencies, philanthropic organizations, and providers, and are disseminated in journals and conferences alongside publishers like The New England Journal of Medicine, JAMA, and The Lancet.

Conferences and Training

Annual conferences and learning collaboratives draw leaders from healthcare systems, academic centers, and provider networks including Veterans Health Administration, Department of Veterans Affairs', Massachusetts General Hospital, Mount Sinai Health System, and international partners such as World Health Organization and International Federation on Ageing. Training programs cover clinical topics, leadership development, and technology implementation with faculty from Harvard T.H. Chan School of Public Health, Johns Hopkins Bloomberg School of Public Health, University of Minnesota School of Nursing, and consultants from McKinsey & Company and Deloitte. Events include exhibitions featuring vendors like Philips, Honeywell, Siemens Healthineers, and GE Healthcare.

Criticisms and Controversies

Critiques have arisen regarding advocacy positions on payment reform, relationships with for-profit entities, and responses to public health emergencies, often debated in media outlets such as The New York Times, Washington Post, Politico, ProPublica, and Kaiser Health News. Controversies include disputes over staffing standards, transparency, lobbying disclosures, and conflicts highlighted by watchdogs like ProPublica and investigations by state attorneys general, as well as academic critiques from scholars at University of California, Berkeley, Rutgers University, and University of Chicago. The association has also faced scrutiny over partnerships with pharmaceutical and technology corporations and discussions with regulators such as Office of Inspector General (HHS) and Federal Trade Commission.

Category:Non-profit organizations based in Washington, D.C.