Beyond Type 1
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| Beyond Type 1 | |
|---|---|
| Name | Beyond Type 1 |
| Formation | 2015 |
| Type | Nonprofit organization |
| Headquarters | United States |
| Focus | Type 1 diabetes awareness, support, research funding |
Beyond Type 1 Beyond Type 1 is a nonprofit organization focused on supporting people with type 1 diabetes and funding research into treatments and cures. Founded in 2015, the organization operates in the United States and engages with international partners, patient communities, medical institutions, and technology companies. It works alongside advocacy groups, research networks, healthcare providers, and philanthropic foundations to expand resources and visibility for type 1 diabetes.
History
Beyond Type 1 was established in 2015 by a group of entrepreneurs and advocates influenced by developments at institutions such as Harvard University, Stanford University, Massachusetts Institute of Technology, University of California, San Francisco, and University of Oxford. Early activities drew attention from media outlets including The New York Times, The Washington Post, BBC News, CNN, and NBC News and connected with advocacy organizations like JDRF, American Diabetes Association, Diabetes UK, Canadian Diabetes Association, and Juvenile Diabetes Research Foundation. The organization expanded its network through collaborations with technology companies such as Apple Inc., Google, Amazon (company), Dexcom, and Medtronic and research consortia affiliated with NIH, National Institute of Diabetes and Digestive and Kidney Diseases, Imperial College London, Karolinska Institutet, and Mount Sinai Health System.
Mission and Activities
The mission emphasizes patient empowerment and accelerating research by partnering with institutions like Mayo Clinic, Cleveland Clinic, Johns Hopkins University, UCLA Health, and Columbia University. Activities include community outreach coordinated with organizations such as American Red Cross, Gates Foundation, Robert Wood Johnson Foundation, Kaiser Permanente, and Partners HealthCare (Mass General Brigham). The group engages influencers and public figures including Michelle Obama, Lady Gaga, Prince Harry, Duke of Sussex, Serena Williams, and Stephen Colbert to raise awareness, and it liaises with policy makers associated with U.S. Congress, World Health Organization, European Commission, United Nations, and WHO Europe to shape visibility for type 1 diabetes.
Programs and Services
Programs and services include peer support models resembling initiatives from Facebook, Reddit, Meetup (company), TED Conferences, and Khan Academy. Educational content leverages partnerships with academic publishers and institutions such as Elsevier, Springer Nature, Oxford University Press, Cambridge University Press, and Johns Hopkins University Press. The organization offers fundraising and community events inspired by models from Susan G. Komen, ALS Association, American Cancer Society, St. Jude Children's Research Hospital, and Habitat for Humanity International. It also collaborates with wearable and digital health firms like Fitbit, Samsung Electronics, Philips, Siemens Healthineers, and Roche to support technology adoption among people with type 1 diabetes.
Research and Advocacy
Research initiatives coordinate with networks and trials affiliated with National Institutes of Health, European Medicines Agency, Food and Drug Administration, Biotechnology Innovation Organization, and ClinicalTrials.gov. Advocacy work intersects with policy groups and coalitions including PatientsLikeMe, AARP, Public Citizen, Human Rights Campaign, and Global Health Council. The organization has pursued research funding and partnerships involving philanthropic entities like Wellcome Trust, Chan Zuckerberg Initiative, Bill & Melinda Gates Foundation, Howard Hughes Medical Institute, and Rockefeller Foundation, and academic collaborators from Yale University, Princeton University, Brown University, University of Pennsylvania, and Northwestern University.
Funding and Organization
Funding has come from individual donors, corporate partners, and grant-makers similar to backers of health nonprofits such as Ford Foundation, Carnegie Corporation of New York, MacArthur Foundation, Annenberg Foundation, and Bloomberg Philanthropies. Organizational structure includes boards and advisors with connections to hospitals and universities like Children's Hospital of Philadelphia, Great Ormond Street Hospital, St. Jude Children's Research Hospital, Royal Free Hospital, and Peter Munk Cardiac Centre. Administrative and program staff often coordinate with professional associations such as American Medical Association, European Society of Cardiology, Endocrine Society, American Association of Clinical Endocrinologists, and International Diabetes Federation.
Impact and Criticism
Reported impacts include increased public awareness and fundraising similar to effects attributed to campaigns by Movember Foundation, #MeToo movement, Ice Bucket Challenge, Giving Tuesday, and World Diabetes Day. The organization has been discussed alongside debates involving pharmaceutical pricing like those concerning Pfizer, Novartis, Sanofi, Eli Lilly and Company, and Bristol Myers Squibb, and technology access controversies related to Apple Health, Google Health, Amazon Web Services, Microsoft Azure, and Meta Platforms. Criticism in public discourse references concerns raised by commentators and institutions such as ProPublica, The Lancet, New England Journal of Medicine, The BMJ, and Nature about nonprofit fundraising, research priorities, and partnerships with industry.