National Eczema Association

National Eczema Association. The National Eczema Association, founded in 1988 by Susan Tofte and Lisa Helms, is a non-profit organization dedicated to improving the lives of individuals with eczema, also known as atopic dermatitis, a condition that affects millions of people worldwide, including Jennifer Aniston and Kylie Jenner. The organization works closely with American Academy of Dermatology, National Institute of Arthritis and Musculoskeletal and Skin Diseases, and Food and Drug Administration to provide education, support, and resources to individuals with eczema and their families, including Mayo Clinic and Cleveland Clinic. The National Eczema Association also collaborates with other organizations, such as American Skin Association, Society for Investigative Dermatology, and European Academy of Dermatology and Venereology, to advance research and improve treatment options for eczema.

● History

The National Eczema Association was established in 1988, with the goal of providing support and education to individuals with eczema, a condition that was often misunderstood and stigmatized, as noted by Dr. Peter Lio and Dr. Lawrence Green. The organization's early work focused on raising awareness about eczema, and it quickly gained recognition from National Institutes of Health, Centers for Disease Control and Prevention, and World Health Organization. Over the years, the National Eczema Association has grown to become a leading authority on eczema, working with renowned experts, such as Dr. Jon Hanifin and Dr. Eric Simpson, and organizations, including American Academy of Allergy, Asthma, and Immunology and Society for Pediatric Dermatology. The organization has also partnered with Patient-Centered Outcomes Research Institute, Agency for Healthcare Research and Quality, and National Library of Medicine to advance research and improve patient outcomes.

● Mission_and_Objectives

The National Eczema Association's mission is to improve the health and quality of life for individuals with eczema, through education, support, and research, as outlined by Dr. Emma Taylor and Dr. Amy Paller. The organization's objectives include increasing awareness and understanding of eczema, promoting research and development of new treatments, and providing resources and support to individuals with eczema and their families, in collaboration with Eczema Society, Dermatology Foundation, and Skin Cancer Foundation. The National Eczema Association also works to advocate for the needs of individuals with eczema, and to promote access to effective treatments and care, as supported by American Medical Association, American Academy of Pediatrics, and National Association of School Nurses. The organization's work is guided by a Board of Directors, which includes experts from Harvard University, Stanford University, and University of California, San Francisco.

● Programs_and_Services

The National Eczema Association offers a range of programs and services to support individuals with eczema, including educational resources, support groups, and online communities, such as Eczema Support Group and Atopic Dermatitis Forum. The organization also provides guidance on managing eczema, including tips on skin care, diet, and stress management, as recommended by Dr. Richard Gallo and Dr. Donald Leung. Additionally, the National Eczema Association offers a Seal of Acceptance program, which recognizes products that are suitable for individuals with eczema, in partnership with Consumer Reports and Good Housekeeping. The organization also collaborates with Pharmaceutical Research and Manufacturers of America, Biotechnology Innovation Organization, and National Organization for Rare Disorders to promote research and development of new treatments.

● Research_and_Advocacy

The National Eczema Association is committed to advancing research and advocacy for eczema, working with leading researchers, such as Dr. Thomas Casale and Dr. Peck Yang, and organizations, including National Institute of Environmental Health Sciences, Environmental Protection Agency, and World Allergy Organization. The organization provides funding for research grants, and supports studies on the causes, diagnosis, and treatment of eczema, in collaboration with National Institute of Diabetes and Digestive and Kidney Diseases, National Institute of Neurological Disorders and Stroke, and National Institute of Mental Health. The National Eczema Association also advocates for policies and legislation that support the needs of individuals with eczema, and works to raise awareness about the impact of eczema on individuals and families, as supported by American Autoimmune Related Diseases Association, National Coalition of Autoimmune Patient Groups, and Alliance for a Stronger FDA.

● Certification_and_Education

The National Eczema Association offers certification programs for healthcare professionals, such as Certified Eczema Specialist and Eczema Educator, in partnership with American Nurses Association, American Academy of Nurse Practitioners, and Society of Dermatology Nurse Practitioners. The organization also provides educational resources and training for healthcare professionals, including continuing medical education courses and workshops, as accredited by Accreditation Council for Continuing Medical Education and American Medical Association. Additionally, the National Eczema Association offers educational programs for individuals with eczema and their families, including webinars, support groups, and online forums, in collaboration with Patient Advocate Foundation, National Patient Advocate Foundation, and HealthWell Foundation.

● Awareness_and_Outreach

The National Eczema Association works to raise awareness about eczema, and to promote understanding and acceptance of individuals with the condition, as supported by National Eczema Awareness Month, World Skin Health Day, and Rare Disease Day. The organization partners with media outlets, such as CNN, NBC News, and The New York Times, to share stories and experiences of individuals with eczema, and to promote awareness about the condition, in collaboration with National Press Club, Society of Professional Journalists, and Public Relations Society of America. The National Eczema Association also works with influencers and celebrities, such as Kristen Bell and David Beckham, to raise awareness and promote understanding of eczema, and to support research and advocacy efforts, as recognized by WebMD, Healthline, and MedlinePlus. The organization's awareness and outreach efforts are guided by a Communications Committee, which includes experts from University of Pennsylvania, University of Michigan, and University of California, Los Angeles. Category:Medical organizations