Cystic Fibrosis Foundation

Cystic Fibrosis Foundation is a nonprofit organization dedicated to finding a cure for Cystic Fibrosis, a genetic disorder that affects the Lungs and Digestive System of individuals, including Frank Deford's daughter Alexandra Deford. The foundation was established in 1955 by a group of parents, including Dorothy Hansine, whose child was diagnosed with the disease, and has since become a leading organization in the fight against Cystic Fibrosis, working closely with National Institutes of Health and Food and Drug Administration. The foundation has made significant contributions to the development of treatments and therapies, including the work of Dr. Francis Collins and Dr. Lap-Chee Tsui, and has supported research at institutions such as Johns Hopkins University and University of California, San Francisco. With the help of Celebrities like Josh Groban and Miley Cyrus, the foundation has raised awareness and funds for Cystic Fibrosis research, including through events like the Great Strides walk.

● History

The Cystic Fibrosis Foundation was founded in 1955 by a group of parents, including Dorothy Hansine, who were determined to find a cure for their children's disease, and has since worked with organizations like American Lung Association and March of Dimes. In the early years, the foundation focused on providing support to families affected by Cystic Fibrosis, including Frank Deford's family, and advocating for increased research funding, including from National Institutes of Health and Congress. The foundation's efforts led to the establishment of the Cystic Fibrosis Research Institute at Stanford University, which has become a leading center for Cystic Fibrosis research, and has collaborated with researchers like Dr. Michael Welsh and Dr. Paul Quinton. Over the years, the foundation has also worked with Pharmaceutical Companies like Vertex Pharmaceuticals and Gilead Sciences to develop new treatments and therapies, including Kalydeco and Orkambi, which have been approved by the Food and Drug Administration.

● Mission_and_Goals

The Cystic Fibrosis Foundation's mission is to find a cure for Cystic Fibrosis and to improve the quality of life for individuals with the disease, including through the work of Cystic Fibrosis Foundation Therapeutics, a nonprofit Biotechnology Company established by the foundation. The foundation's goals include supporting research to understand the underlying causes of Cystic Fibrosis, developing new treatments and therapies, and providing access to care and support for individuals with the disease, including through partnerships with Health Organizations like American Thoracic Society and European Cystic Fibrosis Society. The foundation also aims to raise awareness about Cystic Fibrosis and to advocate for policies that support individuals with the disease, including through events like the Cystic Fibrosis Foundation's Annual Conference, which has featured speakers like Dr. Francis Collins and Dr. Lap-Chee Tsui. With the help of Researchers like Dr. Michael Welsh and Dr. Paul Quinton, the foundation is working towards a future where Cystic Fibrosis is no longer a life-threatening disease, and has collaborated with institutions like Harvard University and University of Oxford.

● Research_and_Development

The Cystic Fibrosis Foundation has a strong commitment to research and development, and has invested heavily in Basic Research and Clinical Trials to develop new treatments and therapies, including through partnerships with Biotechnology Companies like Vertex Pharmaceuticals and Gilead Sciences. The foundation has supported research at institutions like Johns Hopkins University and University of California, San Francisco, and has collaborated with Researchers like Dr. Francis Collins and Dr. Lap-Chee Tsui to advance our understanding of Cystic Fibrosis. The foundation has also established a number of research programs, including the Cystic Fibrosis Foundation Research Development Program, which provides funding and support to early-career researchers, including those at Stanford University and Massachusetts Institute of Technology. With the help of Donors like Bill Gates and Warren Buffett, the foundation has been able to support a wide range of research initiatives, including the development of new Medications like Kalydeco and Orkambi, which have been approved by the Food and Drug Administration.

● Fundraising_and_Awareness

The Cystic Fibrosis Foundation relies on fundraising and awareness efforts to support its mission, including through events like the Great Strides walk and the Cystic Fibrosis Foundation's Annual Gala, which has featured Celebrities like Josh Groban and Miley Cyrus. The foundation has a strong network of Volunteers and Donors, including Corporate Sponsors like Microsoft and Google, who help to raise awareness and funds for Cystic Fibrosis research, including through partnerships with Health Organizations like American Lung Association and March of Dimes. The foundation also uses Social Media platforms like Twitter and Facebook to raise awareness and engage with the Cystic Fibrosis community, including through campaigns like Cystic Fibrosis Awareness Month, which has been supported by Influencers like Kim Kardashian and Justin Bieber. With the help of Partners like National Institutes of Health and Food and Drug Administration, the foundation is working to increase awareness and understanding of Cystic Fibrosis, and has collaborated with institutions like Harvard University and University of Oxford.

● Programs_and_Services

The Cystic Fibrosis Foundation offers a range of programs and services to support individuals with Cystic Fibrosis and their families, including Clinical Care and Support Services, which are provided through a network of Cystic Fibrosis Centers and Accredited Care Centers across the United States, including at Johns Hopkins University and University of California, San Francisco. The foundation also provides Education and Advocacy programs, including the Cystic Fibrosis Foundation's Patient Assistance Program, which helps individuals with Cystic Fibrosis to access Medications and other treatments, including Kalydeco and Orkambi, which have been approved by the Food and Drug Administration. With the help of Partners like American Thoracic Society and European Cystic Fibrosis Society, the foundation is working to improve the quality of life for individuals with Cystic Fibrosis, and has collaborated with researchers like Dr. Michael Welsh and Dr. Paul Quinton.

● Leadership_and_Governance

The Cystic Fibrosis Foundation is led by a team of experienced professionals, including Preston W. Campbell III and Robert J. Beall, who have a deep understanding of Cystic Fibrosis and a commitment to finding a cure, and has worked with Board Members like Dr. Francis Collins and Dr. Lap-Chee Tsui to advance the foundation's mission. The foundation's Board of Trustees includes Leaders from the Biotechnology and Pharmaceutical Industries, as well as Researchers and Clinicians who are experts in Cystic Fibrosis, including those from Stanford University and Massachusetts Institute of Technology. The foundation is also guided by a Scientific Advisory Board, which includes Experts like Dr. Michael Welsh and Dr. Paul Quinton who provide advice on research and development, and has collaborated with institutions like Harvard University and University of Oxford. With the help of Donors like Bill Gates and Warren Buffett, the foundation is working to ensure that its mission is achieved, and has partnered with organizations like National Institutes of Health and Food and Drug Administration to advance Cystic Fibrosis research. Category:Cystic Fibrosis