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| Psoriasis Association | |
|---|---|
| Name | Psoriasis Association |
| Founded | 1960s |
| Type | Charity |
| Headquarters | United Kingdom |
| Area served | United Kingdom, international |
| Focus | Health, dermatology, patient support |
Psoriasis Association The Psoriasis Association is a charitable organization dedicated to supporting people with psoriasis through information, advocacy, research funding and community programs. Founded in the mid-20th century, it operates in the United Kingdom while collaborating with international bodies, patient groups and medical institutions to improve care, increase public awareness and promote evidence-based treatment. Its activities span patient education, clinical research support, policy engagement and partnerships with health services and professional societies.
The Psoriasis Association provides resources and services for patients, clinicians and researchers concerned with psoriasis, psoriatic arthritis and related comorbidities. It engages with institutions such as the National Health Service, the Royal College of Physicians, the British Association of Dermatologists and specialist clinics at university hospitals including University College London Hospitals and Guy's and St Thomas' NHS Foundation Trust. The Association disseminates guidance aligned with agencies like the National Institute for Health and Care Excellence and collaborates with international organizations such as the World Health Organization, European Academy of Dermatology and Venereology and the International Federation of Psoriasis Associations.
The Association emerged amid postwar health charity activity alongside organizations like the British Red Cross, Macmillan Cancer Support and the Wellcome Trust. Early governance drew on expertise from dermatologists at the Royal Free Hospital, St John's Hospital, Addenbrooke's Hospital and the Royal London Hospital. Over decades it has intersected with campaigns led by figures associated with the National Institute for Health Research, academic departments at the University of Oxford, the University of Cambridge and King's College London, and patient advocacy movements exemplified by groups linked to the Joseph Rowntree Foundation and the Nuffield Trust.
The Association's mission encompasses patient support, public awareness, research advancement and policy influence. It produces patient literature, digital resources and helplines reaching communities served by NHS trusts such as Birmingham Women's and Children's NHS Foundation Trust and Manchester University NHS Foundation Trust. To amplify impact it engages with professional bodies including the General Medical Council, the Health and Safety Executive and charitable funders like the Wellcome Trust and the British Heart Foundation, recognizing cardiovascular comorbidity connections studied at institutions such as Imperial College London and King's College Hospital.
Programs include telephone and email support, print and online educational materials, regional support groups and peer networks modeled on initiatives by Age UK, Shelter and Mind. Clinical outreach involves liaison with dermatology departments at the Royal Victoria Infirmary, Sheffield Teaching Hospitals and Newcastle upon Tyne Hospitals NHS Foundation Trust. The Association offers information on systemic therapies used in dermatology units such as phototherapy services at St Bartholomew's Hospital and biologic treatments evaluated in trials at institutions including the Francis Crick Institute, the Liverpool School of Tropical Medicine and the Wellcome Sanger Institute.
The Association funds and promotes research into pathogenesis, treatment and quality of life studies conducted at research centers like the MRC Clinical Trials Unit, the National Institute for Health Research Clinical Research Network, the Institute of Dermatology and the Institute of Translational Medicine. It advocates for equitable access to treatments through engagement with policymakers at Westminster, devolved administrations in Edinburgh and Cardiff, and regulatory agencies such as the Medicines and Healthcare products Regulatory Agency and the European Medicines Agency. The Association collaborates with academic partners at the University of Edinburgh, Queen Mary University of London and University of Manchester to publish data and contribute to clinical guidelines alongside the British Association of Dermatologists and the American Academy of Dermatology.
Funding sources include charitable donations, legacies, membership fees and grants from philanthropic bodies like Comic Relief, the National Lottery Community Fund and philanthropic trusts associated with the Leverhulme Trust and the Garfield Weston Foundation. Governance structures mirror governance models found in charities registered with the Charity Commission and incorporate trustees drawn from clinical leaders at institutions such as Great Ormond Street Hospital, the Royal Infirmary of Edinburgh and the Christie NHS Foundation Trust, as well as patient representatives with links to patient participation groups and university hospitals in Liverpool and Bristol.
The Association partners with patient organizations and health charities including Diabetes UK, Asthma UK, Arthritis Research UK, the Stroke Association and Mind to address comorbidities and mental health. International linkages include collaborations with the European Federation of Psoriasis Associations, patient networks associated with the World Health Organization and academic exchanges with the National Institutes of Health and the Centers for Disease Control and Prevention. Impact is measured through improved patient self-management, contributions to clinical trials led by teams at Oxford, Cambridge and UCL, and policy changes influenced by joint campaigns with bodies such as the Royal College of General Practitioners, the King's Fund and Healthwatch.
Category:Health charities in the United Kingdom Category:Dermatology organizations