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| Patient Experience Network | |
|---|---|
| Name | Patient Experience Network |
| Formation | 21st century |
| Type | Nonprofit |
| Headquarters | United Kingdom |
| Region served | United Kingdom, international projects |
Patient Experience Network
Patient Experience Network is a nonprofit organization focused on improving healthcare service delivery through patient feedback, measurement, and advocacy. It engages with NHS trusts, academic institutions, charity groups, regulatory bodies, and technology vendors to translate patient-reported data into service redesign and policy advice. The organization convenes conferences, publishes case studies, and provides training to clinicians, managers, and commissioners.
Patient Experience Network operates at the intersection of National Health Service, NHS Scotland, NHS Wales, and Health and Social Care in Northern Ireland systems, collaborating with academic centers such as University College London, King's College London, and University of Oxford health policy units. It routinely liaises with regulatory and oversight bodies including Care Quality Commission, Healthcare Improvement Scotland, and National Institute for Health and Care Excellence. Stakeholders include patient charities like Healthwatch England, Macmillan Cancer Support, British Heart Foundation, and specialist trusts such as Great Ormond Street Hospital. The network draws on methods used by institutions such as Institute for Healthcare Improvement, The King's Fund, and Nuffield Trust.
The organization's roots trace to practitioner-led movements for patient-centered care influenced by landmark reports and events including the Francis Report, the Bristol Royal Infirmary Inquiry, and policy shifts after the Health and Social Care Act 2012. Early collaborators included advocacy groups such as Patients Association and research programs at London School of Hygiene & Tropical Medicine and Imperial College London. Conferences and learning events brought together figures from Department of Health and Social Care, hospital chief executives from trusts like Guy's and St Thomas' NHS Foundation Trust and academics publishing in journals associated with BMJ and The Lancet. Over time it expanded internationally through partnerships with organizations such as World Health Organization and networks associated with Institute for Patient- and Family-Centered Care.
Governance typically combines a board of trustees, advisory panels, and operational staff with roles reflecting standards developed by bodies like Charity Commission for England and Wales and corporate governance practice exemplified by institutions such as NHS Improvement. Advisory membership often includes patient leaders drawn from groups like Royal College of Nursing, clinicians from hospitals such as Royal Free London NHS Foundation Trust, and academics from University of Manchester and University of Cambridge. Funding oversight and compliance refer to frameworks used by National Audit Office and reporting benchmarks similar to those of Chartered Institute of Public Finance and Accountancy.
The network offers training programs modeled on curricula from Health Education England and measurement tools akin to those employed by Picker Institute Europe and Patient Reported Outcomes Measurement Information System. Programs include patient experience surveys, co-design workshops with participants from Age UK and British Medical Association, leadership development for executives from trusts like Leeds Teaching Hospitals NHS Trust, and improvement collaboratives using methods from Model for Improvement and Lean Six Sigma. It publishes case studies and learning resources drawing on methodologies from NHS England and shares outcomes through events similar to NHS Confed conferences.
Evaluation frameworks reference metrics established by Care Quality Commission inspections, NHS England patient experience indicators, and research designs used at University of Oxford and London School of Economics. Reported outcomes have included improvements in patient satisfaction used by trusts such as University Hospitals Birmingham NHS Foundation Trust and reductions in readmission rates reported in studies affiliated with Queen Mary University of London. Independent evaluations have been conducted in collaboration with academic partners including University of Liverpool and University of Glasgow to assess changes in service delivery and staff engagement.
The network collaborates with charitable funders such as National Lottery Community Fund and corporate partners including health technology firms that supply experience platforms used by NHS Digital. It partners with patient groups like Mind and Cancer Research UK and professional bodies such as General Medical Council and Royal College of Physicians. Funding streams include grant awards from foundations like Wellcome Trust, commissioned projects from NHS England, and income from events and consultancy in line with models used by The King's Fund.
Critiques mirror debates in health policy literature from outlets such as The BMJ and The Lancet about the validity of patient-reported measures and the risk of tokenism identified by watchdogs including Care Quality Commission. Challenges include balancing relationships with corporate partners noted in inquiries involving NHS Improvement, ensuring rigorous evaluation comparable to trials published by Cochrane Collaboration, and navigating complex procurement rules under legislation such as the Public Contracts Regulations 2015. Tensions also arise between rapid quality improvement cycles used in Institute for Healthcare Improvement collaboratives and long-term academic research agendas at universities like University of Manchester.
Category:Healthcare organizations