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| Leukaemia Care | |
|---|---|
| Name | Leukaemia Care |
| Formation | 1990 |
| Type | Charity |
| Headquarters | United Kingdom |
| Region served | United Kingdom |
Leukaemia Care is a United Kingdom-based charity founded to support people affected by blood cancers, including advocacy, information, and patient services. It works alongside hospitals, clinical research networks, and other charities to provide peer support, information resources, and campaigning on policy issues affecting patients and families. The organisation engages with major healthcare bodies, academic centres, and patient groups to influence practice and research.
Leukaemia Care operates within the healthcare charity sector alongside organisations such as Macmillan Cancer Support, Marie Curie (charity), Blood Cancer UK, National Health Service (England), and National Institute for Health and Care Excellence. It provides services throughout the United Kingdom and partners with institutions including the National Health Service (Scotland), NHS Wales, and health trusts like Guy's and St Thomas' NHS Foundation Trust and Royal Marsden Hospital. The charity liaises with regulators and funding bodies such as National Institute for Health and Care Excellence and Cancer Research UK to align informational materials with clinical guidelines. Its governance structure involves trustees and executive staff with links to specialist centres such as University College London Hospitals NHS Foundation Trust and academic groups at University of Oxford and University of Cambridge.
Leukaemia Care addresses many haematological malignancies, informing patients about diagnoses including acute myeloid leukaemia, acute lymphoblastic leukaemia, chronic lymphocytic leukaemia, chronic myeloid leukaemia, and rarer entities like hairy cell leukaemia and acute promyelocytic leukaemia. Diagnostic pathways referenced include services at tertiary centres such as Royal Free Hospital, diagnostic laboratories accredited by Medicines and Healthcare products Regulatory Agency, and multidisciplinary teams found at specialist units like Leeds Teaching Hospitals NHS Trust. The charity explains investigations including peripheral blood film, bone marrow aspiration and trephine, cytogenetics such as Philadelphia chromosome, molecular tests used in centres like Great Ormond Street Hospital for paediatric cases, and imaging offered at trusts such as Addenbrooke's Hospital.
Information materials cover treatment modalities delivered at regional oncology centres including Royal Marsden Hospital, Christie Hospital, and John Radcliffe Hospital. Treatments discussed include systemic chemotherapy regimens used in trials at Clinical Trials Unit (CTU) sites, targeted therapies such as imatinib for chronic myeloid leukaemia developed following research from institutions like University of Cambridge, monoclonal antibodies akin to agents used after studies at Memorial Sloan Kettering Cancer Center, and haematopoietic stem cell transplantation performed at transplant centres like Royal Free Hospital and King's College Hospital. Leukaemia Care provides guidance on management of treatment complications informed by guidelines from National Institute for Health and Care Excellence and collaborates with clinical networks such as the Haemato-Oncology Specialist Network and research consortia affiliated with University of Birmingham.
The charity offers resources on supportive care needs similar to services provided by hospices like St Christopher's Hospice and rehabilitation programmes offered by centres such as Royal National Orthopaedic Hospital for treatment-related morbidity. Resources include information on blood transfusion pathways overseen by services like NHS Blood and Transplant, infection prophylaxis protocols informed by guidance from Public Health England, fertility preservation options discussed with units like Guy's Hospital Fertility Centre, and psychosocial interventions drawing on models from Cancer Research UK survivorship projects. Rehabilitation and return-to-work advice references occupational health services at trusts including Barts Health NHS Trust and initiatives from charities such as Mind (charity).
Leukaemia Care runs peer support helplines, online communities, and information booklets, collaborating with organisations such as Blood Cancer UK, Macmillan Cancer Support, Marie Curie (charity), and specialist charities like Children's Cancer and Leukaemia Group. It advocates for patients in policy fora alongside groups that engage with Department of Health and Social Care, parliamentary committees, and standards set by National Institute for Health and Care Excellence. Services include patient navigation similar to models used at Royal Marsden NHS Foundation Trust, financial guidance reflecting links with Citizens Advice, and bereavement support coordinated with hospices like Trinity Hospice. Educational outreach has been delivered in partnership with universities including King's College London and University of Manchester.
Leukaemia Care informs patients about clinical trials run by networks such as the National Institute for Health Research Clinical Research Network and trials sponsored by academic groups at University of Oxford, University of Cambridge, University College London, and international collaborators including European Society for Medical Oncology. Outcomes information references survival statistics compiled by agencies like Office for National Statistics and studies published in journals associated with institutions such as Imperial College London and University of Birmingham. The charity supports patient involvement in trial design through partnerships with trial units and research charities including Cancer Research UK and the Leukaemia & Lymphoma Society model of patient engagement, and promotes dissemination of results from landmark studies originating at centres like Royal Marsden Hospital and Memorial Sloan Kettering Cancer Center.