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East Anglia's Children's Hospices

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East Anglia's Children's Hospices
NameEast Anglia's Children's Hospices
Formation1990s
TypeCharity
HeadquartersNorfolk
Region servedNorfolk, Suffolk, Cambridgeshire, Essex
Leader titleChief Executive

East Anglia's Children's Hospices is a regional charity providing palliative care and hospice services for children and young people across Norfolk, Suffolk, Cambridgeshire and parts of Essex. Founded to support families facing life-limiting and life-threatening conditions, the charity operates specialist facilities, community teams and bereavement support, and relies on fundraising, volunteers and strategic partnerships to sustain services. The organisation works alongside NHS trusts, local authorities, and national charities to integrate clinical care, family support and respite provision.

History

The charity emerged in the late 20th century amid a landscape shaped by institutions such as Great Ormond Street Hospital, St John's Hospice, Marie Curie (charity), Macmillan Cancer Support, Children's Hospice South West, and Sands (stillbirth and neonatal death charity), drawing on models from Helen & Douglas House and Helen House. Early governance involved figures connected to Norfolk County Council, Suffolk County Council, Cambridgeshire County Council, and local health bodies including Norfolk and Norwich University Hospital and Addenbrooke's Hospital. Development phases were influenced by policy decisions considered at venues like Westminster and consultations with organisations such as NHS England and Department of Health and Social Care (United Kingdom). Capital campaigns referenced examples set by Royal Marsden Hospital, Royal Brompton Hospital, and fundraising approaches used by British Heart Foundation and Great Ormond Street Hospital Children's Charity. Over time the charity expanded services during periods marked by national events including the 2012 Summer Olympics fundraising surge and philanthropic movements tied to trusts like the National Lottery Community Fund and charitable foundations such as Wellcome Trust and Lankelly Chase Foundation.

Facilities and Services

Facilities include purpose-built hospices sited near population centres and rural communities, developed with input from architects experienced with projects like Royal Papworth Hospital and NGOs such as Save the Children. Clinical teams provide specialist nursing, palliative medicine, physiotherapy and occupational therapy, operating alongside tertiary units such as Addenbrooke's Hospital and Norfolk and Norwich University Hospital. Community outreach mirrors models employed by Barnardo's and The Children's Society, offering home-based care, symptom management, short breaks, and family support resembling services at Acorns Children's Hospice and Rainbow Trust. Bereavement and sibling services are coordinated with providers like CRUSE Bereavement Support and educational liaison with institutions like University of East Anglia and Anglia Ruskin University. The charity maintains end-of-life care pathways consistent with guidance from Royal College of Paediatrics and Child Health and links with research carried out at centres such as Cambridge Biomedical Campus and Norwich Research Park.

Fundraising and Finance

Fundraising strategies combine retail, events, major donors, and grant applications modeled after campaigns by Oxfam, Cancer Research UK, and Save the Children. The charity operates charity shops and community fundraising branches resembling those of British Red Cross and RNLI, and runs events comparable to London Marathon satellite fundraising, corporate partnerships like those with Barclays and Aviva, and legacy giving programmes inspired by Royal British Legion. Financial oversight aligns with standards from Charity Commission for England and Wales and auditing practices used by firms such as PwC and KPMG. Income streams have included grants from bodies like Big Lottery Fund and philanthropic gifts akin to support from Wellcome Trust and Gatsby Charitable Foundation, while expenditure covers staffing, clinical equipment similar to procurement at Great Ormond Street Hospital, maintenance of properties, and outreach services coordinating with Clinical Commissioning Group structures and local NHS commissioning bodies.

Governance and Partnerships

The board has comprised trustees drawn from sectors represented by institutions like University of Cambridge, University of East Anglia, Norfolk Chamber of Commerce, and legal advisors with links to The Law Society. Strategic partnerships include collaborations with NHS trusts such as Cambridgeshire and Peterborough NHS Foundation Trust, Norfolk Community Health and Care NHS Trust, and children's services from Suffolk County Council and Essex County Council. Clinical governance follows frameworks from General Medical Council guidance and standards set by Care Quality Commission. Research and training partnerships involve academic units at Cambridge University Hospitals NHS Foundation Trust and links to professional bodies including Royal College of Nursing and Faculty of Intensive Care Medicine.

Volunteer and Community Involvement

Volunteer programmes mirror those at St John Ambulance and Royal Voluntary Service, engaging community fundraisers, shop volunteers, and clinical support volunteers in roles similar to positions within Barnardo's and The Children's Society. Community engagement includes school partnerships with local education authorities and outreach through networks like Rotary International and Lions Clubs International, while corporate volunteering schemes echo collaborations seen with BT Group and Tesco. Local media partnerships with outlets such as BBC East and Eastern Daily Press support awareness campaigns, and volunteer training is often informed by curricula used by Skills for Care and national safeguarding standards from NSPCC.

Category:Children's charities based in the United Kingdom Category:Health charities in England