Cancer Information Service

Cancer Information Service
Name	Cancer Information Service
Founded	0 1975
Location	United States
Area served	National
Focus	Cancer information and support
Method	Telephone, online, outreach

Cancer Information Service. A national information and education initiative established to provide the public, patients, and health professionals with accurate, up-to-date information on cancer. It operates as a key component of the National Cancer Institute's efforts to disseminate research findings and support evidence-based decision-making. The service is designed to bridge the gap between complex scientific discoveries and public understanding, offering confidential and free assistance.

Overview

The initiative functions as a vital communication channel connecting the National Institutes of Health with communities across the United States. Its core mission is to translate the latest findings from cancer research into accessible language and practical resources for diverse audiences. By serving as a centralized hub, it helps individuals navigate the vast landscape of cancer information, from prevention and screening to treatment and survivorship. The program's foundation is built upon the scientific authority of the NCI and its network of collaborating institutions.

Services provided

Trained information specialists provide personalized responses to inquiries covering all aspects of cancer, including explanations of specific diagnoses like breast cancer or prostate cancer. They offer details on standard treatment options, clinical trials listed in the national database, and strategies for coping with side effects. The service also distributes authoritative publications from the NCI, such as those on chemotherapy or radiation therapy, and can assist in locating local resources and support services like those offered by the American Cancer Society. Specialized outreach is conducted for populations with distinct needs, including Spanish-speaking communities.

History and development

The program was launched in 1975 following the National Cancer Act of 1971, which significantly expanded the mandate and resources of the National Cancer Institute. Its creation was a direct response to growing public demand for reliable information amid increasing cancer incidence and advances in oncology. Initially a telephone-based service, it expanded over the decades to incorporate new technologies, including online live help and email. Key milestones included the integration with the NCI's PDQ database and partnerships with organizations like the American Society of Clinical Oncology to ensure information currency.

Access and availability

Primary access is provided through a national, toll-free telephone number that connects callers directly to information specialists. Services are available in both English and Spanish, with translation support for many other languages. The program's resources are also accessible online via the NCI website, which features live chat functionality. While headquartered within the NCI, the service leverages a network of regional contractors to ensure national coverage and local relevance. All interactions are confidential, and the service is free of charge.

Impact and evaluation

Studies and user satisfaction surveys have consistently demonstrated the service's effectiveness in reducing anxiety and improving knowledge among patients and caregivers. It has handled millions of inquiries since its inception, becoming a trusted source that complements the work of community oncologists and hospitals like the Memorial Sloan Kettering Cancer Center. Evaluations often highlight its role in improving health literacy and facilitating informed participation in healthcare decisions. The service's model has influenced similar information lines established by other institutes within the National Institutes of Health.

Related programs and partnerships

The initiative works closely with other NCI divisions, such as the Center for Cancer Research and the Surveillance, Epidemiology, and End Results Program. It maintains collaborative relationships with major advocacy groups, including the American Cancer Society and the National Comprehensive Cancer Network. Furthermore, it supports broader public health campaigns like the National Breast and Cervical Cancer Early Detection Program and contributes to smoking cessation efforts in coordination with the Centers for Disease Control and Prevention. These partnerships amplify its reach and ensure information is integrated into wider community health efforts.

Category:National Cancer Institute Category:Cancer organizations Category:Health information services